Mom: Son Conscious During 23-Year Coma
Belgian Man in 1983 Car Crash was Fully Alert, but Doctors Thought
He Was in Vegetative State

(AP)  A man who emerged from what doctors thought was a vegetative
state says he was fully conscious for 23 years but could not respond
because he was paralyzed, his mother said Monday.

Rom Houben, 46, had a car crash in 1983 and doctors thought he had
sunk into a coma. His family continued to believe their son was
conscious and sought further medical advice.

Professor Steven Laureys of Belgium's Coma Science Group realized
that the diagnosis was wrong and taught Houben how to communicate
through a special keyboard, said Dr. Audrey Vanhaudenhuyse, who is
on Laureys' team.

Rom used the device to tell a reporter for the German magazine Der
Spiegel that: "I screamed but there was nothing to hear."

Belgian doctors who treated him early on said that Rom had gone from
a coma into a vegetative condition.

Coma is a state of unconsciousness in which the eyes are closed and
the patient can't be roused, as if simply asleep. A vegetative state is a
condition in which the eyes are open and can move, and the patient
has periods of sleep and periods of wakefulness, but remains
unconscious and unaware of him or herself or others. The patient can't
think, reason, respond, do anything on purpose, chew or swallow.

But Rom's parents would not accept that he was comatose or
vegetative.

His mother, Fina Houben, said in a telephone interview that they took
him five times to the United States for tests.

More searching finally got her in touch with Laureys, who put Houben
through a PET scan that indicated he was conscious. The family and
doctors then began trying to establish communication.

A breakthrough came when he was able to indicate yes or no by
slightly moving his foot to push a computer device placed there by
Laureys' team.

Then came the spelling of words using his finger and a touch-screen
attached to his wheelchair.

"You have to imagine yourself lying in bed wanting to speak and move
but unable to do so — while in your head you are OK,"
Vanhaudenhuyse said. "It was extremely difficult for him and he
showed a lot of anger, which is normal since he was very frustrated,"
she said.

The case came to light after Laureys published a study in the journal
BMC Neurology this year showing that about four out of ten patients
with consciousness disorders are wrongly diagnosed as being a
vegetative state. Houben, although not specifically mentioned, was part
of the study.

Houben has started writing a book on his experiences.


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